The New Normal

So you have made it through a stem cell transplant and are now mostly recovered.  Awesome, congratulations!  But be sure to adjust your expectations that you will quickly return to your baseline physical and mental condition from before your diagnosis.  While you will feel pretty good, know that it takes a long time to fully get back to what you were.  And some people never get back to 100%.

It really becomes a matter of managing your expectations and gradually working on your physical and mental recovery.  Just like the way you worked through your treatment regimen – patience and one day at a time – is the same thing you need to do with your long term recovery.  Stay with your daily workout routine, which should include walking, and try to gradually increase the level of workout and distance covered.  “Gradually” being the operative word here.  Don’t push yourself too hard or too fast, or you will find yourself being set back.  Just resolve yourself to the reality that you can’t rush things, no matter how badly you want to speed up your recovery time.  And you should also find something to challenge yourself mentally to give your brain a workout.  I found playing Scrabble worked well for me.

You will eventually get to a good physical and mental condition.  It might not be fully what you were before, but it is certainly better than the alternative!  While your physical recovery will be fairly easy to measure, your mental recovery is a trickier thing to quantify.  Depending on the level and intensity of your treatments, “chemo brain” can be a very real and annoying condition.

Don’t let yourself get too frustrated when you find you can’t remember things that you know you knew before your treatments.  You have to cut yourself some slack and admit this is what happens to a person after they go through the tough treatments you did.  At the risk of being the bearer of bad news, I don’t know if it ever comes back 100%.  I am now sixteen years post auto stem cell transplant and I still experience chemo brain moments.  And this was before my Leukemia treatments started a year and a half ago!  Maybe it is a bit of senior-ites, but I don’t think so.  Nancy is close to my age and she doesn’t seem to have these issues.

I think the best answer is to keep at it and to admit to yourself that it is okay when you hit a wall of physical endurance or mental clarity.  After all that we have been through, we deserve to be given a break once in a while.

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