Since it appears that many people new to my blog have not read all of my previous posts (shocking, I know!) I thought it would be appropriate to re-post my original thoughts on why I am writing this blog and the source of the title.
In 2002, a few days after my 45th birthday, I was diagnosed with Multiple Myeloma (bone marrow cancer). Happy Birthday! When I got the phone call from my oncologist informing me of the diagnosis, I had learned just enough about Myeloma to ask “what stage was it?” When he told me it was stage three, I said “well that’s not so bad, what out of ten?” To which he replied “no, out of three.” Well, I thought that was hilarious and cracked myself up. I think that was the point that I became good friends with my oncologist.
Multiple Myeloma is not a particularly cheery cancer. It is a terminal cancer with no known cure – YET! At the time I was told that I would be lucky to live three years. After some pretty intense treatments including a stem cell transplant using my own “cleaned up” stem cells, I am now going on sixteen years being pretty much Myeloma-free. And for the most part they have been GREAT years.
That is, except for the year and a half starting on November 30, 2016 when my oncologist informed me that I had a full blown case of Acute Myeloid Leukemia. He told me I had to go into the hospital the next day where I would be for a month starting my intense treatments. I said “Come on, really? Drop everything and go in for the month of December?” He told me that if I didn’t, I would be dead in two weeks. Well, guess who dropped everything and went into the hospital the next day? Merrrrry Christmas!
My Leukemia treatments were a heck of a lot tougher than my Myeloma treatments. It included another stem cell transplant, this time using my brother Kyle’s donated stem cells (love that Kyle!!!) and a much longer and tougher recovery period. The good news is I am now fifteen months post-transplant and at this point there are no signs of Leukemia in me! While they are all very happy, I don’t think my doctors quite know what to do with me.
Anyway, as most cancer patients who are undergoing treatments know, “See you in thirty days” is usually the time between doctor appointments. You have thirty days to worry about if the other shoe is going to drop, or you can try to live your life. Learning how to live your life in thirty day increments is a process and it takes a while to get to the point where you can accept your situation and strive to make the best of it.
Hopefully my experiences can be an encouragement to others and my crazy life can add a few laughs along the way.
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